ot parkinsons disease

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rossim92
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ot parkinsons disease

Post by rossim92 »

my uncle died with parkinsons disease, it hit him hard!. I am showing signs of the disease. i will see a specialist next month. i am really interested in thc or cbd foe relief from the shakes if it gets worse. any opinions on this from the medical group? not really interested in the so called pills doc subscribe if they have bad side effects. would it hurt anything if i start taking cbd gummis for the the tremors before the diagnosis , or even afterwards.
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Bill in Oregon
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Re: ot parkinsons disease

Post by Bill in Oregon »

Friend, I cannot offer advice, but only prayers for your case to be a mild one that goes into remission. I have seen this up close with a co-worker and it is a hard thing indeed.
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GunnyMack
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Re: ot parkinsons disease

Post by GunnyMack »

PM sent
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AJMD429
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Re: ot parkinsons disease

Post by AJMD429 »

.
The best of us can't diagnose or treat without seeing and examining and testing and so on, but there are many tremors that aren't Parkinson's.

If it does turn out to be that, there is a huge spectrum of severity and progression, too.

Along the way there are many medications and treatments, and although I am one who doesn't trust 'big pharma' there ARE many decent medications.

As a pharmacist-turned-physician, I think of medications in terms of 'cleanliness', in the sense of how well understood their mechanism of action is,and what else it affects other than what we want it to affect, and how predictable and consistent those effects are.

Several Parkinson's meds are pretty 'clean'.

In terms of supplements versus regular pharmaceuticals, which is better depends on the thing being treated. Sometimes both work well together. Generally in most places Parkinson's would be firmly diagnosed, then treated, by neurologists rather than primary care, with us stepping in only if things weren't going well. My patients have done so well with conventional treatment that all I've had to do was keep their other conditions under control.

Only a couple in 37 years needed (and did super well with) the DBS 'brain pacemaker'.

There is some intriguing new stuff on a possible infectious cause, too (influenza has been a proposed trigger but not a common one), and here are some interesting things I've found covering some potential breakthroughs, but actually just some basics already known, as well. Sorry they are 'long-format' but that's because they are NOT the usual info-mercial stuff. Drs Peter Attia and Rhonda Patrick both seem very credible to me. These are talks more designed for physicians with OCD who listen to stuff like this while driving or doing chores, but I have a lot of patients who find them informative nonetheless - I promise them that I won't make them take a quiz on the contents. :D There are shorter more dramatic podcasts out there with promises that if you just order the bottle of elixir with the guy's picture on it, you'll be cured, but that kind of stuff is just click-bait marketing.

Article on the bacterial-infection theory - https://www.frontiersin.org/articles/10 ... 81315/full

More with regards to current status with Parkinsons - https://www.youtube.com/watch?v=ORibQVIto-g

There is a lot in common with the 'neurodegenerative diseases' of Parkinsons and dementias, so much prevention and treatment involves things like maintenance of the blood-brain barrier and reduction of errant autoimmune processes.

Overview of neurologic function, aging, movement disorders, and dementia - https://youtu.be/zKFEUV911Zw

More on nutritional/supplement/lifestyle approach - https://youtu.be/lChdNK0I8bw

And generally keeping the brain healthy - https://youtu.be/zkp0DRUQ33g

Just remember the people you most likely know with Parkinson's are people who have it in a severe enough form to be 'public' with their diagnosis - it is often mild and doesn't even need medication for a decade or more.
Last edited by AJMD429 on Sun Jun 02, 2024 9:34 am, edited 1 time in total.
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jeepnik
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Re: ot parkinsons disease

Post by jeepnik »

I’ve seen first hand how this disease robs not just the victim but all who know them of their quality of life long before life itself.

My prayers are with you.
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AJMD429
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Re: ot parkinsons disease

Post by AJMD429 »

.
Sad how there was a bunch of Parkinson's in the 1980's we saw that was probably triggered by paraquat used to posture against marijuana in large-scale government-funded spraying campaigns, and of course the 'authorities' blamed the marijuana for the Parkinson's...
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rossim92
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Re: ot parkinsons disease

Post by rossim92 »

thanks for the replies
Rossi 92 .357 lever , and a cz pcr 9mm
Henry .22 lever, Remington speedmaster 552 .22 lr
Marlin Glenfield .22 boltaction
gforce 12ga semi
Taylor's Tactical 1911 A1 FS in .45acp
ruger vaquero, 357 magnum
Marlin 336W .30.30
beeman sportsman rs2 dual caliber pellet rifle
henry .22 magnum pumpaction/octagon barrel
stag 5.56 m4 with reddot
Bill in Oregon
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Re: ot parkinsons disease

Post by Bill in Oregon »

And thanks to Doc AJ for once again blessing this forum with a physician's perspective. Sometimes I don't think we know how lucky we are ... 8)
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Re: ot parkinsons disease

Post by Ysabel Kid »

Bill in Oregon wrote: Sun Jun 02, 2024 5:58 pm And thanks to Doc AJ for once again blessing this forum with a physician's perspective. Sometimes I don't think we know how lucky we are ... 8)
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6pt-sika
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Re: ot parkinsons disease

Post by 6pt-sika »

My pop dealt with it for about thirty years . His shakes were not as acute as Michael J Fox’s but he still had more like twitches . In the later years he showed signs of dimencia or Alzheimer’s the darn doctors wouldn’t admit that it was a sort of side affect until a couple years before he passed . My pop’s Parkinson’s limited his ability to move around freely more than the shakes . Hope you have better luck than my pop .
Parkers , Mannlicher Schoenauer’s , 6.5mm's and my family in the Philippines !
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Re: ot parkinsons disease

Post by Sixgun »

This is what I learned from the medical field…(no offense ADMD as I know you don’t “buy into the system”…………

The medical field is as crooked as Joe Biden……in the end, they do their job well but treatments are made to be money oriented first, and your health second….

I have Meniers Disease which is an inner ear fluid buildup and you get these vertigo attacks. I went to 9 doctors and 3 ENT’s and I cured the problem myself with information on the internet…….no pills, just keep your salt level down to 1200 mg………(WHAT, one of those 12 doctors couldn’t tell me that?). …...very long story and I don’t want to get into it but these doctors wanted me to travel for these specialized tests and on and on……..I did not buy into their “suggestions” after one ENT sent me to get new hearing aids which was a part of his office.

Same with dentists…..I told my dentist, “fill it or pull it”. ….of course this was after they soaked me and my insurance company for somewhere about 20 big ones. Their “fixes” would last 5 years.

I’m 69 and in excellent health for my age…my doc told me I’m his healthiest senior citizen……I climbed 20 feet up a tree the other day and can unload 4,000 lbs of stone from my trailer without stopping. I work hard near everyday….I HATE winters.

This all boils down to your issue……be careful and thoughtful when a doctor suggests something, especially expensive tests.

THC and its derivatives scare Big Pharma. You can’t OD on CBD or HHC. With HHC a whole gummy will give ya a healthy buzz, the munchies, and you’ll laugh at anything, especially here. :D

Throw away all of your medicine and use the below pictured………I’ve been using CBD oil off and on for about 5 years….In the last year I’ve been getting the aches and pains of old age…….one a day of each and my BP is 125/75, NO aches or pains, as limber as a say..50 years old.,
Sleep through the night solid a minimum of 8 hours (one or two pee breaks) , excellent appetite, calm mood……..

The only downfall is you get sleepy if you take more than a half of a gummy., not enough to stop what your doing so I sometimes hold off until 6-8 pm before I take any. It’s legal about everywhere and does not show up on tests.

Your call…….i lost a full year of mental well being because I listened to the doctors…most anything can be cured yourself.

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wvfarrier
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Re: ot parkinsons disease

Post by wvfarrier »

My dad died of covid but had Parkinsons for 8 years, he and it got so bad he could not even feed himself. He started smoking the Devils Lettuce and with in 20 minutes he barely had any tremors and was able to do most of his normal daily tasks.
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Sixgun
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Re: ot parkinsons disease

Post by Sixgun »

wvfarrier wrote: Mon Jun 03, 2024 5:35 am My dad died of covid but had Parkinsons for 8 years, he and it got so bad he could not even feed himself. He started smoking the Devils Lettuce and with in 20 minutes he barely had any tremors and was able to do most of his normal daily tasks.
That was a worthwhile contribution……..many people don’t want other people to know they smoke weed….who gives a S.? As we all age (if we are lucky) we have lots of wisdom…..I forgot how many people and friend’s parents who got cancer and could not eat…..couple of tokes later and they were digging in….

Marijuana is truly nature’s medicine. These no good politicians deny many people relief from their suffering because of taking bribes from Big Pharma……

I stopped smoking it 30 years ago because I didn’t care for the loss of coordination while enjoying my hobbies but the next best legal option is HHC…..much better than CBD oil. You don’t get as high when smoking weed but the pain relief is there…….my knees will swell up a day or do before a storm which makes it difficult to enjoy life……half a HHC and two hours later I’m out chasing the dogs….and speaking of dogs, you ought to see an old dog start enjoying life again after a CBD gummy….

We all know the side effects of medicine….the list of things that can go wrong during a commercial take up half the time……I can’t think of any side effects from weed if used medicinally…….overuse will turn you into a blob who just sits there and looks at the walls…:D
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stretch
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Re: ot parkinsons disease

Post by stretch »

Big Pharma can't patent natural medicines, so they poo-poo them.
And they've done everything they can to make them illegal.

I used to suffer from severe sinus infections. I now have a Neti pot.
Best things ever! I feel a cold coming on, and I rinse 2X a day. Said cold is either
gone or the symptoms are much reduced. But every year or so, I see on the
news how one shouldn't use one because some oddball, super-rare bacteria
can infect your brain and kill ya via the Neti pot. Never mind they've been used
for thousands of years in the mid and far east. Use water that you can drink, a pinch
of salt and you're all set. Boil the water first if you're paranoid.

I haven't had a bad sinus infection in something like 20 years now. 8)

-Stretch
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GunnyMack
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Re: ot parkinsons disease

Post by GunnyMack »

And now they sell that sinus thing that pumps the water in one side and out the other!

I had allergies real bad as a kid, the Dr decided they were going to vacuum my sinuses. I don't know how many adults it took to hold me down but I fought tooth and nail ! I swear to this day that's why I have sinus problems. I can't use eye drops, ear drops, nasal sprays due to that experience.
Who in their right mind would vacuum a 6yr olds sinuses other than a sadist!!
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rossim92
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Re: ot parkinsons disease

Post by rossim92 »

i gotta resarch hhc, sems like a happy medium between weed and cbd
Rossi 92 .357 lever , and a cz pcr 9mm
Henry .22 lever, Remington speedmaster 552 .22 lr
Marlin Glenfield .22 boltaction
gforce 12ga semi
Taylor's Tactical 1911 A1 FS in .45acp
ruger vaquero, 357 magnum
Marlin 336W .30.30
beeman sportsman rs2 dual caliber pellet rifle
henry .22 magnum pumpaction/octagon barrel
stag 5.56 m4 with reddot
44shooter
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Re: ot parkinsons disease

Post by 44shooter »

My stepdad got the second phase of the brain pacemaker surgery today at UNC hospital. His Parkinson’s has been really progressive lately.
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